Kleine-Levin syndrome known as sleeping beauty syndrome

Carol RoachStarred Page By Carol Roach, 31st Jul 2015 | Follow this author | RSS Feed
Posted in Wikinut>Health>Mind & Spirit>Sleep

People around the world complain they do not get enough sleep. Yet, sleep affects our physical and mental health. Not having enough sleep affects our mood, our stamina, our home-life and career, and our social relationships

Introduction

First I want to say hibernating bear this has nothing to do with Montreal, I don't even know if anybody in Montreal has this condition it is quite rare.

What is Kleine-Levin Syndrome


Kleine-Levin Syndrome is also known as Sleeping Beauty Syndrome and evokes images of a beauty young girl right out of a Disney classic. Ironically Kleine-levin Syndrome affects young males three times more than females. Kleine-Levin Syndrome is a neurological disorder that affects sleep and it is no fairytale condition. It is very debilitating. Kleine-Levin Syndrome is a sleep disorder classified under the category of recurrant hypersomnia.

Idiopathic hypersomnia is a condition where sufferers are excessively sleepy during the day and will sleep for long periods at a time during the day. This type of sleeping is non-rapid eye movement sleep which means there is no dreaming involved. Idiopathic hypersomnia may appear to be the same as narcolepsy but it is not. Idiopathic hypersomnia does not include the secondary symptoms of narcolepsy which include: cataplexy (loss of muscle tone), hypnogogic hallucinations, and sleep paralysis.

Kleine-Levin Syndrome falls under the category of recurrent hypersomnia and both idiopathic and recurrent hypersomnia pretty much have the same symptoms except for that fact that idiopathic hypersomnia is constant and the sleeping is of longer duration. Recurrent hypersomnia can happen for days on end and then stop until the next attack.

However, though Kleine-Levin Syndrome falls specifically under the subcategory of recurrent hypersomnia, it does come with a set of unique symptoms not found in other types of hypersomnia or in narcolepsy.

Kleine-Levin Syndrome symptoms

There are no genetic markers associated with Kleine-Levin Syndrome found at this time.

Kleine-Levin Syndrome symptoms:

excessive sleeping up to 18 hours a day
difficult to wake up when asleep
irritable and cranky when woken up
can become aggressive when not allowed to sleep
cognitive impairment, such as being in a state of confusion
amnesia (not remembering sleeping so much)
depression
hallucinations,
compulsive behaviors
delusions
feeling of derealization (feeling that the world is strange, different, not normal around you)
walking around in a dream-like state
hypersexuality ( excessive masturbation, promiscuity and inappropriate sexual advances) most prominent in males
eating disorders (eating enormous amounts of food)

Kleine-Levin Syndrome demographics

Kleine-Levin Syndrome is a form of recurrent hypersomnia which affects 68 percent of the males in this very rare sleeping disorder. Actually KLS only affects about 5 percent of the general population in the first place.

The onset of of Kleine-Levin Syndrome generally begins in adolescence at the median age of 15 and continues for about 8 years. People with Kleine-Levin Syndrome will experience these sleep attacks for about 10 days and then it reoccurs every three or 4 months.

Teenager girls and women who represent 32 percent of people with Kleine-Levin Syndrome may experience longer bouts of sleep attacks and the women tend to be older when Kleine-Levin Syndrome first presents itself.

A 2008 study of 108 Kleine-Levin syndrome cases showed that the first episode could present as late as 59 years of age.

Other research indicates that Caucasians are affected three times more than other ethnic groups, but people of Jewish decent are affected six times more often. However, Kleine-Levin syndrome is not considered a Jewish genetic disease.

Kleine-Levin Syndrome causes

There are no known causes established at this time, however, Kleine-Levin Syndrome is sometimes associated with head injury, sleep deprivation, cold or infection, stress, physical exertion, traveling, and marijuana and alcohol use.

Kleine-Levin Syndrome diagnosis and treatment

Diagnosis

It is very difficult to diagnosis Kleine-Levin Syndrome because there really are no telltale symptoms other than recurrent hypersomnia which will not differentiate Kleine-Levin Syndrome from other forms of recurrent hypersomnia. Doctors therefore, have to make a diagnosis based on exclusion, meaning they have to rule out everything else that might mimic or resemble the condition. Kleine-Levin Syndrome suffers will often get a diagnosis of hypersomnia and doctors will ask for various tests such as hypothyroidism, and diabetes when looking for an underlying cause.

Several disorders such as inflammation, lesions, multiple sclerosis and tumors can mimic Kleine-Levin Syndrome. An MRI can determine and rule out some of these conditions.

Sometimes people with Kleine-Levin Syndrome are misdiagnosed for having a mental disorder such as depression or bipolar disorder syndrome.

Treatment

Unfortunately, there is no specific treatment for Kleine-Levin Syndrome. Stimulants are used to help with wakefulness, but there is no treatment or medication to address the cognitive impairment or other altered mental states. Since Kleine-Levin Syndrome shares some symptoms of bipolar disorder some patients are reporting that lithium and carbamazepine are proving to be helpful by stopping the episodes or at least shortening them.

Conclusion

Kleine-Levin Syndrome rare as it is, is a condition that affects every aspect of a person’s life. People with Kleine-Levin Syndrome sleep most of their life away. They may be unable to sustain gainful employment, or have meaningful relationship. Kleine-Levin Syndrome wrecks havoc on one’s personal life, and social life. The absurd behaviours are reported as being embarrassing and can lead to social alienation.

Fortunately, the disorder rarely lasts beyond 10 years. Several studies are going on with a call for volunteers to try to understand the condition and possibly come up with an early cure.


All photos taken from the public domain

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Comments

author avatar spirited
31st Jul 2015 (#)

There are so many rare diseases and conditions out there now, I am glad I am pretty normal, this sounds really debilitating, Carol.

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author avatar Carol Roach
31st Jul 2015 (#)

yes there are, I enjoy researching them as well.

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author avatar Kingwell
31st Jul 2015 (#)

Good share. Blessings.

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author avatar Helen Thomas
2nd Aug 2015 (#)

Thanks for sharing this well-researched post ~ Carol.

Blessings to you.

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author avatar Vanisa
23rd Dec 2016 (#)

my name is vanisa i had kleine-levin syndrome for over 10 years , sometimes i sleep for a week sometimes more than a week i got confused daily it was really not good for me as i hardly concentrate on my studies , i have to quit studies due to KLS , one day when i was going through some articles on the internet i saw a testimony of how dr.noble helped someone with KLS i immediately contacted him via noblespellhome@gmail.com and today am now free from KLS .
you can contact him to get a cure for KLS via his website noblespellhome.wix.com/mysite or noblespellhome@gmail.com, he is the only man with the solution to sleeping beauty syndrome .
thanks Dr.Noble your are truly a Noble man .

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