Psoriasis Awareness day

krrymarieStarred Page By krrymarie, 29th Oct 2010 | Follow this author | RSS Feed
Posted in Wikinut>Health>General Health>Diseases & Infections

Its Psoriasis Awareness day today, There is not enough awareness in the world, about this condition, yet it is, depressing, painful, emotional, physical, incurable! Cancer is, painful, emotional, depressing, physical but curable! So please, be more aware of Psoriasis and do not stare, or fear us but embrace us instead.

Psoraisis Awareness day.

Its Psoriasis awareness day today, this is an annual event day, to make people aware of psoriasis and its condition.
This is not a contagious disease so cannot be caught.
There are millions of people that suffer from this awful condition, but still they cannot find a cure for it.

It could also affect the bones and this is called psoriatic arthritis

No one is really sure why poeple have this condition.

No one is really sure why people are affected with this disease, but it is due to the skin growing a lot quicker than normal skin, so then it flakes off and can leave red marks.
The skin looks very dry, and can come in patches, spots, blisters. Its very itchy, and can be painful too.
Some people were born with it, and it can run in families, others it just turned up with no reason at all.

Stress, emotions, anger all of this can make the condition worse.

Treatment

To treat this condition, there are many creams and potions out there to use, but not many work, or they might work for a little while then the skin becomes immune to it and it just stop working altogether.

They say coals tar is the best way to treat it, but most of these do not work at all, also steroid creams which are good but you have to be careful with them and not to get them on good skin, this treatment can also course a thinning of the skin, so its not wise to over use this ointment.

There also are Biologics, which are quite new, they are injected and do have very good effects on the skin too, but some can be strong and can effect the liver. As well as the injections there are also tablets that can be taken but they do have a bad side effect too, though works very well on the skin.

UVB is also a good treatment to have, its like a sunbed but on a different narrowband, so all the bad stuff has been taken out, though there is still a risk to skin cancer. Again this treatment can be quite effective, though the treatment to a long drawn out affair as have to go to the hospital three times a week, and can be in the sunbed up to 30 minutes, ( if you can make it that far)

Diet

Diet is important too, as some foods can make the condition worse like, Tomatoes, spices, red meats, alcohol, and dairy products.
Again this does not effect everyone, some say they changed their diet and their skin got better, some say theirs disappeared and some had no effect at all on their skin,
Like treatments not everything is going to work for the same two people, it is all trail and error.

How it can afffect people

It can effect people in different ways, some can cope quite well with it and have no problems what so ever, but some people find it hard coping with it and it can lead to depression, and the person may have to leave work.
This is also emotional, and physical, condition and as the result people who do have it get stared at, and named called especially young children.
It could effect the whole family as well, and can be hard for parents, partners to watch their love one go through this and go through all the emotions involved in it.

In some countries where you have to pay for your health insurance this can work out quite expensive, and as a result of this many people do go without their treatment which is bad for them as it makes the condition worse. So they have the emotional factor of dealing with that too, as it's a financial matter, which can have a strain on the familys income.

Research

There is not enough research has done on psoriasis hence for the awareness day to make more people aware of the condition, as many people do not even know it exists.
Millions of people world wide are affected by this, and yet they still have not found a cure for it.
We use creams etc to help us yet it is an auto immune system disease so why is that not treated? We do not know.

They spend millions of pounds each year on research for cancer, and people are so much more aware of this than they are Psoriasis, yet Psoriasis is incurable, where, as cancer it can be cured and people can go on and lead a healthy life where, as psoriasis sufferers cannot do this.
So why is there no awareness of this disease? Why is it not advertised on the telly and in magazines to make people aware and why do many suffer in silence?
The government needs to turn this around, and allow for more research more funding so they can find a cure, like they have done for cancer.

Me and my Psoriasis

My story, I have had Psoriasis as well as psoriatic arthritis for about ten years or more now.
I am not sure what caused it as no one in my family has got it, though I did suffer a lot with my tonsils, so the doctor think that this might have been what caused mine but is not sure.

It started just behind my knee, which was no big deal then it went to my other knee so went to he docs, he said it could be psoriasis but not sure so I came away with some creams which made it disappear.

After a few months or so my knees started to get sore and walking became difficult especially in the rain, so of to the doctors I went again and he put me on some anti inflammatory which seemed to help, but I was going to the doctors nearly every week as was getting so much pain and, but by this time I couldn't dress myself or walk up the stairs. I was 26, going onto 86, I kept going with my job but that was a struggle being a carer I needed one myself.

After a while my skin complaint came back but on my elbows, and my knees, the pain in my bones was still there, so I had some blood test and was diagnosed with arthritis. My world came tumbling down being a mum of a small boy, I found life very hard.

I had creams for my skin but nothing really worked though the tablets were working for my bones, but on rainy and damp days I found it very hard to walk and get on with normal life winters were a nightmare!

After trying loads of creams nothing was working I gave up on going to the doctors and tried something out for myself but it just got worse and spread, and by April 2008 I was so bad with my skin it was horrible so decided to go back to the doctors and he advised light treatment, and yes it was a long old haul ( going three times a week) but it worked, though didn't stay clear for long.
However at last I got some relief from it though for a short while and then back on the creams I had to go, after a while I managed to get it under control and didn't need light treatment again till this year.

Over my whole body, I have big patches and little patches, I am embarrassed by this, usually I try to keep covered up but not as much as I used to.
I have and do suffer from depression.

I hate it when people comment or stare at my psoriasis, I don't like trying clothes on in the changing rooms in case I flake, and when I am at someone's, I always try to check that I haven't flaked and left my skin behind. Though my friends understanding and don't mind but it is embarrassing for me.

When I go away to stay at my friends, I brush the sheet down every morning to try get rid of the flakes, and I sweep and wash the floor before I leave so not to leave my skin behind. Again she is very understanding and don't mind but I do.

Yes it is very embarrassing, though I have settled down a bit, and it doesn't seem to worry me that much any more, but it could just be because we have just had summer and my skin isn't so bad at the moment as psoriasis likes the summer but hates the winter!

I still have psoriatic arthritis and always will do, but I can now walk, dress, go to the gym, walk up stairs and do most things that I couldn't before.
I am even planning on going Jogging again in the summer if I can get fitter in the winter!

All suffers want is a bit of understanding and for someone to find a cure!

For all sufferers out there.

Krrymarie.

Tags

Disease, Diseases, Diseases And Conditions, Psoriasis, Skin, Skin Complaints, Skin Health, Skin Problem, Skins, Treatment

Meet the author

author avatar krrymarie
I am new to all this, I enjoy writing poetry, haiku's and and anything that interests me in general.
I enjoy poetry, reading, photography, listening to music of all kinds, playing world of war craft.

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Comments

author avatar roryanne muldrake
29th Oct 2010 (#)

Thanks for posting this. I was not aware there was a day for those who suffer from psoriasis. My mother had it bad. At one time, she was receiving cortisone shots for it, which helped the psoriasis but softened the marrow in her bones. She broke two bones in her back.
This was the 60's though.
Again, good article.

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author avatar krrymarie
29th Oct 2010 (#)

Thank you Muldrake.
Your poor mum, yes things have come a lot further now but still there is no money for research and this needs to be changed, the sooner the better.
I have a tat on my wrist of the ribbon for awareness day and yes I had it done exactly a year ago, I wanted to have it finished this year with the words " psoriasis awareness day round it and the date, but as I hurt my wrist I couldn't have it done but will next year
Thanks again for your comment.

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author avatar johnnydod
29th Oct 2010 (#)

Well put together brilliant article, this needed to be put onto the web.
Congrats Kerry

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author avatar krrymarie
29th Oct 2010 (#)

Thank you so much Johnny. x

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author avatar Denise O
29th Oct 2010 (#)

Krrymarie, what a wonderful article...
Great job!
I have a friend who suffers with this and it is more serious than most even realize.
Thank you for putting it out there.
Congrats on a absolutely wonderful article.
You deserve two stars.
Thank you for sharing.:)

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author avatar krrymarie
30th Oct 2010 (#)

Thank you denise,.
Yes it is more serious than what people know, it can take 4 years of our lifes.
Its not like cacer and other illness, but it still have the same affect, and there should be a cure for it.
I hate living with it and the pain of psoratic arthritis can be dreadful!
Thank you for your comment hope you and your friend are well.

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author avatar Retired
8th Jan 2011 (#)

Excellent work. Great job.

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author avatar krrymarie
12th Jan 2011 (#)

Thank you again Martin.

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author avatar Greenfaol
16th Jan 2011 (#)

Excellent article. i don't think you should be embarrassed about it, you certainly can't help leaving skin behind (many people with dandruff don't seem to mind).
Have heard that swimming in very salty water helps, and also that it is made worse by stress. Reiki is said to ease it (the itching anyway). I have mild eczema, so I can only imagine how bad it must be for you. Best wishes to you.

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author avatar krrymarie
16th Jan 2011 (#)

Thank you Greenfaol, its just poeple stare and do but then I suppose it cos they don't know what it is. I have heard the swiiming helps in salty water the red sea is suppose to be the best place to go!
I have had reiki but for another thing and it is a wonderful and so relaxing i keep meaning to have some more but with work and other things just don't get the time.
My son has mild eczema and I did in my teens then this hit me at about 26 so I know how you feel too.

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author avatar Rathnashikamani
1st Apr 2011 (#)

krrymarie,

This star page is so special because it is your own experience and makes a great case study about psoriasis.

You came out boldly and without any hesitation in telling the world that you underwent all the trauma that is not just skin deep but gave you deeper emotional distress.

I wish great health to you for having unloaded the burden of such distress in expressing yourself out to the world, by which the healing process would accelerate naturally as you have already recovered to normalcy.

You're soon going to be hale and healthy in total, and I pray for your well being.

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author avatar krrymarie
18th Apr 2011 (#)

Thank you rath for you kind comment. I am still fighting it and will always be fighting. I have good days and bads days but have to cope with it some how. thanks again

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author avatar Jessica
21st Jul 2012 (#)

Thank you for your words. I have been suffering from psoriasis for 10 years now and it is indeed embarassing. I have a really hard time dealing with this condition and am in pain most days. Hopefully there will be better treatments in the future.

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